Growing up with Cystic Fibrosis
It all starts at a diagnosis, many children and adults with Cystic Fibrosis failed to thrive after entering the overwhelming reality of life; but there is some exceptions. Many babies like myself may have struggled to catch breath or gain weight, which sent doctors and nurses frantically looking for answers. I was diagnosed very early on as I failed to thrive and gain any weight. After numerous tests the doctors did a sweat test which determine my fate (Cystic Fibrosis ΔF5080) I can’t begin to imagine what my parents must of thought, after being bombarded with information and questions. Nothing really prepares you for bringing up a child with Cystic Fibrosis. It’s a condition with no guidelines but your full of questions with little answers. It’s a learning curve none of us are prepared for because Cystic Fibrosis affects everyone differently . So whilst you listen to the facts and statistics; just remember no one explains the different mutations. So how can you base your ch...